All pediatricians, general practitioners and birth centres of Switzerland have received in October 2009 an information letter about the feasability study on the screening with the Stool Color Card. This study ended in 2015. About 10’000 cards have been returned with results.
The procedure is the following:
The Stool Color Card is distributed to the parents after delivery and explained by the midwife or the pediatrician. Parents are informed that the stool color can be an indicator of a rare biliary disease. The parents’ possible anxiety can be minimized by mentioning the Guthrie test, which is also performed on all children with the aim of detecting rare diseases. If parents have any further questions, we should explain them that investigations consisting of blood test and abdominal echography must be performed only in case of abnormal stool color. It is important to mention that this is a very rare disease and that screening aims to allow that if an operation is required it is undertaken as soon as possible in order to improve the prognosis of the child.
Parents bring the stool color card to the first consultation with their pediatrician/global practitioner :
- In case of abnormal stool color, the treating physician organizes an urgent etiologic checkup to detect possible neonatal cholestasis
- The treating physician can contact us at any time at firstname.lastname@example.org for more information regarding the procedure to adopt in case of abnormal stool color.
In Switzerland, a feasibility study conducted from 2009 – 2015, confirmed that the use of this Card is simple, effective, and inexpensive and can be used without causing the parents any apprehension or increased anxiety. For the most part, they are very satisfied to receive and use this Card.
I thank you for your kind cooperation.